Liz Horn


Patient Advocate

Liz has spent the last decade building patient-centered research initiatives and collaborations, with a focus on registries and biobanks. She has worked in a variety of national and international organizational structures, bridging the gap between advocacy organizations and academic research institutions. She has also mentored and trained disease advocacy organizations in the translational research enterprise, developing tools and resources for individuals and organizations involved in registries and biobanks. She has a strong foundation in basic science, cancer biology, informatics, registry questionnaire design, and biobank planning and operations.



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