A Revolution in Data Gathering: John WilbanksSubmitted by Theral Timpson on Wed, 07/18/2012 - 18:57
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John Wilbanks, Senior Fellow , The Kauffman Foundation Bio and Contact Info
Listen (7:31) Disconnect between informed consent and digital technology
Listen (9:26) Consent to Research Project
Listen (5:59) Who will be the early volunteers to share their data?
Listen (11:46) Access2Research petition at White House-now what?
Listen (3:59) Can you describe the nature of the legal threats you've received?
Listen (3:33) Would you donate your child's data to research?
Listen (4:23) Data gathering undergoing a revolution
"I like making it easier to share things," says John Wilbanks, a senior fellow at the Kauffman Foundation. Also a member of the Board of Directors for Sage Bionetworks, Wilbanks has been involved in numerous projects having to do with opening up important content and data. Now he runs the Consent to Research Project where he is designing systems that allow people to donate their research to data. Wilbanks discusses the disconnect that is emerging between informed consent and the realities of the digital revolution. In this comprehensive interview he talks about the Access2Research petition he recently spearheaded to extend the NIH's open access policy to the other federal agencies.
Why does John like making it easier to share things? Hear about his past and find out his thoughts on data gathering in the future.